The Lyla Nsouli Foundation for Children’s Brain Cancer was established for Simone’s three year old daughter, Lyla, who lost her 5 month battle with Diffuse Intrinsic Pontine Gilioma (DIPG) in January 2012. There is no effective treatment for DIPG, a brutal brain cancer which affects only children. Due to the lack of funding, research has been limited and progress has been slow, leaving these children and their families with no hope. The foundation is dedicated to funding research that can produce a significant change in the prognosis for these children with the development of effective treatment options. The Lyla Nsouli Foundation
Q. HARDEST LESSON I’VE LEARNED IN BUSINESS?
As a charity director, the hardest lesson I have learned is that there is a lot of competition for sponsorship and financial support for fundraising events, due to the fact that there are so many worthy causes looking for the same support. You can put in a lot of time and effort explaining the great work and objectives of the charity and still miss opportunities because of so much competition. This is hard when you have a very personal connection to a charity. However, we have been lucky to hav some very dedicated, regular sponsors who always offer some support.
Q. THREE THINGS THAT DEFINE YOUR BUSINESS:
The Lyla Nsouli Foundation is a charity that is dedicated to funding pediatric brain cancer research. If I had to choose three things that define the charity I would say they are:
-a singular focus on funding research for treatments for the pediatric brain cancer.
-a focus on Diffuse Intrinsic Pontine Gilioma (DIPG) which is the worst, most fatal form of children’s brain cancer, the lead cause of pediatric cancer related deaths.
-a commitment to raising awareness of DIPG, an orphan cancer, in order to encourage publicity and attention that may help research.
Q. FAVOURITE LOCAL HANGOUT
My favourite “local hangout” is KX Gym. The facilities and the cafe are really fantastic and there’s a quiet, very comfortable place to take a lap-top and work.
Q. WHAT WOMAN INSPIRES YOU?
I can’t say there is one woman who inspires me, but rather many. I am inspired by a lot of women I know, many of whom are friends. They inspire me with their amazing accomplishments, both personal and professional, as well as their kindness, their perseverance and the strength and support they give me.
Q. QUOTE YOU LIVE BY
Maya Angelou is quoted as saying “Nothing can dim the light that shines from within.” That’s a good way of explaining how I feel and try to approach life.